On Diabetes, Elite: Dangerous, and Getting Good

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I love your post and your attitude my man. My wife was diagnosed with type 1 just after we got together which is 11 years ago now. I've witnessed all the ups and downs and I have seen how hard it can be for sufferers. The mental strain and mental health struggles of diabetes are hugely underestimated by normies but are the biggest struggle I think. But your attitude is inspiring! Chin up and show your sugars who's boss!

o7 CMDR
 
I love your post and your attitude my man. My wife was diagnosed with type 1 just after we got together which is 11 years ago now. I've witnessed all the ups and downs and I have seen how hard it can be for sufferers. The mental strain and mental health struggles of diabetes are hugely underestimated by normies but are the biggest struggle I think. But your attitude is inspiring! Chin up and show your sugars who's boss!

o7 CMDR

That was our story with lupus (about 10 years ago now). While that sucks too, I can't deny the resilience it's forced us to cultivate.

Cheers again, everyone. I take great happiness in all the positive vibes here among us all.
 
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rootsrat

Volunteer Moderator
Hi there!

Your friendly neighborhood Phisto here with another collection of words. This is gonna be the most personal post I’ve ever made anywhere, so before I dive in I’d like to make a couple points.
  1. However you play Elite is fine. Like I said, personal post is personal.
  2. I really love this community, especially this ridiculously glorious forum, and my brain just won’t let me not write this. I hope it helps someone who perhaps needed edification, whether they knew it or not.
Alright, here we go!

Very recently I was diagnosed with Type 1 Diabetes. If you’re not down with the lingo it’s a medical condition where my body doesn’t deal with carbohydrates very well. Runs in my family. I was in danger, there was a hospital stay, and my life has been totally turned upside down. Being relatively young, in supposedly good health, and my spouse having a chronic illness too you can bet there’s been a lot of uncomfortable feelings these past few weeks. This is a raw deal I didn’t ask for and that no one deserves, no bones about it.

Now I’m not looking for any sympathy. If there was a time to get Type 1 Diabetes this is it. I'm in the prime of my life. Modern medicine is ridiculously awesome. Beyond that, my family and friends are an incredible source of support and I’m going to be just fine in every way that matters. However, I’d like to share the following with all of you.

As I lay there the first night in the hospital, going through all kinds of tests and getting poked with more needles than I’d ever had in my life, I knew instinctively what lay ahead. Diabetes didn’t care about my feelings, my life, or who I thought I was. Everything was going to be different now and I had one choice:

Get good at living with my condition or die.

Is this dramatic? Yeah. Is it true? Goddamn right it is. What the heck does this have to do with Elite?

This game is special to me because it’s taught me some very valuable lessons on failure, struggle, and accomplishing your goals despite overwhelming opposition. Whether that’s been PvP, BGS wars, or what have you the imaginary universe we all romp around in doesn’t care about you or your feelings. For me, the lessons have been eerily similar to what I thought in that hospital bed. The stakes aren't the same, obviously, but it's really the same kind of thing.

Get good at playing the game or lose. Get good at living with my condition or die.

And you know what? I’m thankful for that. Maybe it’s not the coolest or most mature way to learn these lessons, but I don’t care. I’ve learned them and will leverage them as hard as I can for what lies ahead. And you know what?

So can you.

The film Captain Marvel has been an enormous amount of comfort and strength to me. As the title character struggles she realizes one very important thing: we’re only human. That ability to get up over and over and over again no matter how many times we get knocked down may be the greatest damn virtue we have as a species.

captain-marvel-all-ages.gif

Time to wrap this up. Fact of the matter is I’ve been living my life with one hand tied behind my back. If I thought I was blazing my own trail before?

Heh. See you out there!

Thanks for sharing Phisto. I can certainly relate to some of that stuff. Feel for ya. All the best in your new life. Never give up. Never. See you out there Commander!
 

rootsrat

Volunteer Moderator
Sorry for double post but stories like that and other ones I've read on these forums are great to remind us we're interacting with living people, not just virtual avatars. It's very easy to fall into this trap and forget there is always another human being on the other side of our screen.

I truly believe threads like this are a positive contribution to the community and they make us better.
 
I managed to reverse my Type-2 diabetes through diet and exercise. I’m in remission now but it took and extreme amount of discipline and will power. I know Type-1 is far worse but keep focused and a good diet, exercise and discipline will keep it in check and see you through. Good luck!
 
Ahem. Will I post medical info on a public site? Ok.

Well, I got diagnosed with Diabetes 1 (HAb1c 13.9) at the age of 33. That's an autoimmune disease, not to be mixed up with Type 2. Nobody in my entire family has it, and it came to me like a hammer. It changed my life, and completely, but it is not the end of life. This I know, 17+ years later, and friends of mine have it for nearly 50 years and more. Nobody who has not faced this disease personally will really be able to understand, in particular the topic of hypoglycemia, including the doctors. The first year may well be horrible, from now on walking on a tightrope and you know what I mean. Plus, very basic things like sports, and I was a compassionate swimmer and biker until then, will suddenly get complicated. Through the remission phase, when the remaining 20% of the pancreas still work, it was a daily lottery for me. I faced near death several times because of the spikes (never try to beat my low record of 23 mg/dl!). The good thing is: I definitely was put aside and finally forced to really think about life and death and their meaning again, and I re-found Jesus Christ during that time. Which is eternally good for me, after all, but that's not my focus here. There is hope in the darkest hours, you know the loss and how it feels by now, but there never has been a better time to get this disease. They will tell you why. And if I can recommend anything, get a pump. It will change your life again. And the coming closed-loop systems will remedy much on top of that. Enough said. PM me if you feel like it. I'm a PvE noob, but still a brother in arms, at least :)

NB. Reading your post again, I suddenly relive my own experiences. Choose life. And looking back, Diabetes 1 is not so bad, it's the premium version after all. And all the best things in my life happened after it, even though I considered the end. For instance, I met my wife :)

O7,
🙃
 
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Deleted member 38366

D
Having had my own few little runs with medicine in the last few years.. all I can say : keep the chin up.

My approach to things?
Whatever shows up ahead... steady course, all Engines medium ahead, steady as she goes. Brace for impact if need be - but hold the course.

In as sense, we're all like small Farragut Battle Cruisers. Our bodies might (likely : will) over time catch some scars and impacts from the encounters that life serves us.
Remnants of previous fights with nature/life or simply getting older.
But even if a fight seems lost - the battle a.k.a. the long journey ain't over. Not for as long as our Engines run. In essence, this makes us who we are, defines us.

Anyway, I wish you the best of luck ahead and always some sunshine near you.

o7
 
I managed to reverse my Type-2 diabetes through diet and exercise. I’m in remission now but it took and extreme amount of discipline and will power. I know Type-1 is far worse but keep focused and a good diet, exercise and discipline will keep it in check and see you through. Good luck!
Hi. Can you reverse Type 2 diabetes ? I have someone close who was diagnosed with Type 2. Diet and exercise are very important. Especially diet. I love your spirit Phisto and wish you the best in the future. Incidentally, I was hospitalised years ago and it was the darkest time of my life but somehow I got through it and had some great times since. Elite Dangerous really helps me too. Fly safe.
 
Hi. Can you reverse Type 2 diabetes ? I have someone close who was diagnosed with Type 2. Diet and exercise are very important. Especially diet. I love your spirit Phisto and wish you the best in the future. Incidentally, I was hospitalised years ago and it was the darkest time of my life but somehow I got through it and had some great times since. Elite Dangerous really helps me too. Fly safe.

Hi. Read up on the 800 calories a day diet. Combine that with exercise and the research says type 2 diabetes is eminently reversible. My girlfriend did it and it worked. She also shed loads of weight which made her happier still.

Takes a bit of willpower however.
 
Hi. Read up on the 800 calories a day diet. Combine that with exercise and the research says type 2 diabetes is eminently reversible. My girlfriend did it and it worked. She also shed loads of weight which made her happier still.

Takes a bit of willpower however.
Thank you so much for this. I'll read up on that. Stay strong Cmdrs.
 
I just noticed your heavy metal expression in your profile pic. Heavy metal really really helps me. I read autobiographies of Slash, Duff, Dave Mustaine and Ozzy and Lemmy. Thinking of listening to Megadeth right now, ha ha.
Duff ruptured his pancreas which produces insulin. Lemmy had diabetes since 2000 and Slash had a defibbillator inserted to regulate his heartbeat. Their books are an inspiration and shows how strong we can be when we have to.
 
I just noticed your heavy metal expression in your profile pic. Heavy metal really really helps me. I read autobiographies of Slash, Duff, Dave Mustaine and Ozzy and Lemmy. Thinking of listening to Megadeth right now, ha ha.

Hehe. Love me some metal too now and again. My avatar though is Andrew Scott from Sherlock (the one with Benedict Cumberbatch in the title role). Scott plays the arch villain Jim Moriarty. Below is the scene. Sherlock and Watson are investigating his mysterious "reappearance."

Source: https://www.youtube.com/watch?v=JV0-tNEew6Q

Moments after that he throws up the horns saying, "What's up Big G? That's slang. I'm down with the kids, y'know?"

Deliciously devilish, he is! :D
 
Hi. Can you reverse Type 2 diabetes ? I have someone close who was diagnosed with Type 2. Diet and exercise are very important. Especially diet. I love your spirit Phisto and wish you the best in the future. Incidentally, I was hospitalised years ago and it was the darkest time of my life but somehow I got through it and had some great times since. Elite Dangerous really helps me too. Fly safe.

Diabetes 2 is different from Type 1. Type 1 means your immune sytem suddenly attacked the Insuline-producing cells inside your pancreas, because it mistook them for some virus (or cancer cells, makes no difference here). Chirurgical strike, so to say. The result is that your pancreas generates no Insuline anymore, and until about 70 years ago, that was a certain death sentence. Period. There was no remedy. Think of Heike Tea.

With Type 2 it's the other way round. The pancreas is ok and fine, but the body requires more Insuline than it can produce. So it works 150% and overtime until it finally collapses. Type 2 you can remedy with sports and weight losing, as a trained body can use Insuline more efficiently. At a later stage, you can take pills, beyond that, Insuline injections. Generally, Type 1 is the more severe thing and you typically get it when you're young and healthy, usually after an infection when the immune system is challenged. Unlike Type 2, Type 1 depends on daily Insuline injections, it's uncurable and introduces The Tightrope. For losing the cells that auto-regulated the sugar levels in the blood means there is no balancing anymore. If your blood sugar levels get too low, you're facing death. The brain constantly needs glucose and dies if it gets none. If the glucose level stays too high, you can get all kinds of long term damages I will not lay out here. So you're walkting on a tightrope, death always below you in case of an Insuline overdose, all kinds of horrible things ahead if your sugar levels constantly are too high.
The details of managing this in daily life are too complex to lay out here, but it's manageable after all. I'm living with it for 17+ years now and meanwhile am the CTO, former Lead Software Engineer (Java EE) in a market leading German software company. It's not the end of life, believe me. Diabetes 2 even less so.

O7,
🙃
 
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Diabetes 2 is different from Type 1. Type 1 means your immune sytem suddenly attacked the Insuline-producing cells inside your pancreas, because it mistook them for some virus (or cancer cells, makes no difference here). Chirurgical strike, so to say. The result is that your pancreas generates no Insuline anymore, and until about 70 years ago, that was a certain death sentence. Period. There was no remedy. Think of Heike Tea.

With Type 2 it's the other way round. The pancreas is ok and fine, but the body requires more Insuline than it can produce. So it works 150% and overtime until it finally collapses. Type 2 you can remedy with sports and weight losing, as a trained body can use Insuline more efficiently. At a later stage, you can take pills, beyond that, Insuline injections. Generally, Type 1 is the more severe thing and you typically get it when you're young and healthy, usually after an infection when the immune system is challenged. Unlike Type 2, Type 1 depends on daily Insuline injections, it's uncurable and introduces The Tripwire. For losing the cells that auto-regulated the sugar levels in the blood means there is no balancing anymore. If your blood sugar levels get too low, you're facing death. The brain needs constantly glucose and dies if it gets none. If the glucose level stays too high, you can get all kinds of long term damages I will not lay out here. So you're on a tripwire, death always below you in case of an Insuline overdose, all kinds of horrible things if your sugar levels constantly are too high.
The details of managing this in daily life are too complex to lay out here, but it's manageable after all. I'm living with it for 17+ years now and meanwhile am the CTO, former Lead Software Engineer (Java EE) in a market leading German software company. It's not the end of life, believe me. Diabetes 2 even less so.

O7,
🙃

Blows my mind how far we've come. Every doctor, nurse, and medical professional has just been so laid back about it.

Oh, you got this. It'll be hard, but it's hardly the end of the world like it use to be!
 
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