verminstar
Banned
Ok I'll answer this...I have absolutely no problem talking about my life...it's all very easily viewed on my fakebook profile as public information because I don't hide anything.
I have, to give it the full title, relapsing remitting multiple sclerosis. I have 6 lesions on my brain and 3 that press down on my spinal column...those are the 3 that mean I walk like I'm drunk and give me, at times, severe mobility issues. I'm currently in remission and haven't had a single relapse since I...erm...changed my medicine against the advice of my neurologist who said I would be crippled if I stopped. A year later and I'm not crippled and have more mobility now than I ever had since my diagnosis...my neurologist cannot explain why and wants to carry out further tests to understand why I'm still on my feet.
However...the plot thickens. I'm also a widower single father to an autistic teenager. She has aspergers syndrome to name but one...there are others but that is the main culprit. I have it meself, although to a somewhat lesser degree. Mine is more manageable. My wife passed away when my daughter was 6 years old, and I refused any and all help from social services...mostly because I don't trust them as being a part of the establishment.
Some fights are both mental and physical...in my case, ye can't see the pain but I can assure it's there. To this day, I still refuse a lot of help which I am entitled to because that's the way I am. Up until 6 months before I was diagnosed, I worked a full time physically demanding job, and did mountain biking since the late 1980s.
I console myself with the fact I had a full life before nature's sense of humor caught up with me...spent the first year of this illness with crippling pain, a wheelchair and even a zimmer walking frame. The downward spiral was sudden and brutal from active life to totally disabled.
Everything there is very easily viewed by anyone looking at my FB profile...which is set to public because quite frankly...I don't care who knows. I have nothing to hide...ok no I do but another time perhaps ^^
I have, to give it the full title, relapsing remitting multiple sclerosis. I have 6 lesions on my brain and 3 that press down on my spinal column...those are the 3 that mean I walk like I'm drunk and give me, at times, severe mobility issues. I'm currently in remission and haven't had a single relapse since I...erm...changed my medicine against the advice of my neurologist who said I would be crippled if I stopped. A year later and I'm not crippled and have more mobility now than I ever had since my diagnosis...my neurologist cannot explain why and wants to carry out further tests to understand why I'm still on my feet.
However...the plot thickens. I'm also a widower single father to an autistic teenager. She has aspergers syndrome to name but one...there are others but that is the main culprit. I have it meself, although to a somewhat lesser degree. Mine is more manageable. My wife passed away when my daughter was 6 years old, and I refused any and all help from social services...mostly because I don't trust them as being a part of the establishment.
Some fights are both mental and physical...in my case, ye can't see the pain but I can assure it's there. To this day, I still refuse a lot of help which I am entitled to because that's the way I am. Up until 6 months before I was diagnosed, I worked a full time physically demanding job, and did mountain biking since the late 1980s.
I console myself with the fact I had a full life before nature's sense of humor caught up with me...spent the first year of this illness with crippling pain, a wheelchair and even a zimmer walking frame. The downward spiral was sudden and brutal from active life to totally disabled.
Everything there is very easily viewed by anyone looking at my FB profile...which is set to public because quite frankly...I don't care who knows. I have nothing to hide...ok no I do but another time perhaps ^^